AFG staff & family remember David – raising money for charity

AFG staff have raised nearly £650 for SUDEP (Sudden Death in Epilepsy) Action whilst remembering the life of a loved one.

The event was organised by AFG Area Manager Diane Stanley and her family to raise awareness following the death of her uncle David Washington in August 2018 from (SUDEP). David also had learning disabilities.

Diane said: “The service users and staff from our patch in Cheshire were invited to attend our event. We had a great day and were joined by some of our service users who also had lots of fun! We support a lot of people with a learning disability with epilepsy. I wanted to do some partnership working to promote awareness and how we can help to avoid SUDEP with the people we support.”

“Thank you to Emma Cox who helped out on the day and to everyone who bought a raffle ticket.”

The total raised was £641, £55 from a raffle at AFG’s head office, as well as from a tombola and face painting.

Dianne added: “We’re hoping that SUDEP will soon be working with AFG to give talks to our staff on Sudden Death in Epilepsy.”

Sometimes a person with epilepsy dies during or following a seizure for no obvious reason. This Sudden Unexpected Death in Epilepsy (SUDEP) is uncommon and in some cases may be preventable.

For many people, epilepsy is a condition which can be well-managed and has little or no impact on their life. For others, ongoing seizures mean that epilepsy has a long-term impact on them and their ability to have a ‘normal life’. Like some other medical conditions, epilepsy can be a cause of death in some individuals, although this is not common.

There are more than half a million people with epilepsy in the UK. About 600 people die each year due to SUDEP. Although the percentage of the population who are affected by SUDEP is relatively low, every death due to SUDEP is thought to be potentially avoidable.

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. They are the only UK charity specialised in supporting and involving people bereaved by epilepsy.

To learn more, go to https://sudep.org/